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Our Help & Hope Program: A New Way to Help Families
child in recoveryFamilies caring for a severely ill, injured, or disabled child can experience terrible financial and emotional stresses. Parents may lose their jobs, homes, or much-needed services like utilities and telephone, because the time and costs of caring for the child remove them from work and decrease their income.

Our new Help & Hope Program aims to assist families that are experiencing especially severe difficulties. Through the program, bills for uninsured necessities—like utilities, rent, groceries, or transportation costs—of up to $1,000 per family are paid directly to creditors (to avoid misappropriation of funds). Every dollar raised for the Help & Hope Program goes directly to help families in need.

Just recently we were able to help Anna and her family (names and identifying details have been changed to protect the family's privacy):

Anna, who is 11 years old, is diagnosed with distal spinal muscular atrophy, which affects the function of her diaphragm; she also has asthma and scoliosis. She must use a special mask at night that delivers pressurized air, allowing her to breathe. She is fed through a gastrointestinal tube.

Anna needs various types of therapy to build her strength and improve her ability to breathe. She has undergone multiple surgeries, including a series of rib expansions, a decreased chest expansion, and placement of a rod in her back for her worsening scoliosis. Unfortunately, between trying to get healthy for surgery, having surgery, and recovering from surgery, Anna has missed a lot of school and therapy appointments. She is currently working on strengthening her muscles, but she is confined to an electric wheelchair for even moderate distances.

Anna lives with her mother, father, and six-year-old brother. Her mom works as a home health aide, but often misses shifts because of Anna's needs and nurse call-outs. Her dad is in the military and is often deployed overseas. The family's budget is stretched to cover out-of-pocket expenses like over-the-counter medications, disposable medical supplies, increased utility bills, and the cost of transportation to and from medical appointments. When Anna is in the hospital or recovering from surgery, her mother cannot work. The missed work has impacted the family financially. They will also need to purchase a stair glide soon, which is not covered by insurance.

Thanks to our generous donors, we were able to pay $1,000 toward this family's mortgage and water bills. To make a donation to our Help & Hope Program, please call the office at 215-643-0763.